An open letter to my doctors

In 2016 there were 20,000 deaths attributed to Opioids. Funny thing about that stat. If someone dies to a heroin overdose but has an opioid in their system, they count the person in both categories. There were 15,000 deaths attributed to Heroin. Another interesting stat. There were 45,000 deaths that same year attributed to suicide. People with chronic pain are twice as likely to commit suicide than someone without chronic pain. Which means to say… had 30,000 of those people had access to Opioids, there’s a good chance many of them would still be alive. Now we are telling people with chronic pain that they should remain in chronic pain because some idiots overdosed… do you think the suicide rate will go down or up due to this decision?

People have overdosed on things for decades… that’s not going to stop just because you make opioids harder to come by…. I mean a key point here is that 15,000 people died in 2016 due to Heroin. Is heroin legal somehow? What doctor is prescribing Heroin? People are dying from it nearly as much as from Opioids yet, it’s harder to come by even now than opioids.

The worry that as I get older I will need pain relief more and using it now will desensitize me to the point where it isn’t useful in 15 years. This begs the question… how will I get to 15 years without it?

If you really don’t want me to have opioids, then find me a real alternative. Not this Lyrica and Tylonel crap, that I’m sorry if you people think actually was going to work, you need to go back to school because I could have told you otherwise (and have). Why hasn’t CBD oil been put on the table? What about PAMs? Are any drug companies looking for human guinea pigs for pain drug experiments? If there truly is no other drug besides tylonel and opioids for pain, then we really need to go the route of opioids because that is the only option.

I agree that doctors need to be more careful about who they give opioids to and why. But it’s darn right irresponsible to force a chronic pain patient into pain. Moreover, it’s just mean. I don’t know what I have done to wrong you, but whatever it was, I sincerely apologize for it. I would not wish this sort of pain on anyone I have ever met, I must have done something woefully wrong to warrant this backlash.

Please stop punishing me for what others did with Opioids… it isn’t right. You are causing me a severe amount of pain, and I just can’t take it anymore. This needs to stop and it needs to stop now. I am begging you… help me.

Post Surgery Treatments

It has been a couple of weeks since my surgery which removed my Port-a-cath and put in a PICC line. Outside of the initial mess that the surgery caused me, everything has gone fairly ok I guess. I was on a 24 hour drip for 2 weeks straight. Last Tuesday, I was officially taken off the drip and put on an oral antibiotic instead.

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Infection turns to Surgery

After 6 weeks, the infection finally burst out of my skin and my doctors finally took it seriously. They brought me in fairly quickly, stuck a needle in the site and drew out some of the substance in order to test it to see what it was. Surprise, an infection. The next day they were wanting to take out the entire port, not surprisingly. They wanted to remove the port before they even knew what it was that was wrong. That is how they operate. Continue reading “Infection turns to Surgery”

Infections Abound

A couple weeks ago now, I went to Ohio to see my brother. I haven’t been to his place in nearly five years, so it was a pretty big event. When I got home, my roommate brought sickness with, and so did my mom. It took me a few days, but eventually the sickness did catch up with me and I ended up quite sick and lost three days of work. Continue reading “Infections Abound”

Battling Infection?

I have a port in my chest which helps me take medicine for my Hemophilia. I need to take medication at least and due to this frequency, my veins can’t take the constant use. Thus the port-a-cath. It is a catheter that goes into a major artery and remains under your skin in order to help protect you against infection. In order to access it, you must insert a needle into the center of the port and then you can give yourself medications. Continue reading “Battling Infection?”

Healthcare in America

I need to start this post the way that all employees start posts when they are talking about a job they work in. I work for EDS which is contracted out by Wisconsin as well as many other states to handle Medicaid. My comments here are not representative of EDS, HP (who owns EDS), the state of Wisconsin or anyone else who is somehow affiliated with the health care industry. What I am is an American Citizen whom is disabled with Hemophilia. As such, my life is very much centered around health care, and getting it.

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